You're not alone
If your child has a disability the future may seem like a daunting struggle, not just for them, but for you too. The word 'disabled' covers a very wide range of different conditions and it is estimated that some 15% of people in the UK experience some form of disability at some time in their lives. Remember you and your child are not alone. The government, local council, health and education authorities provide a wide range of benefits, facilities, support and advice for disabled children and their carers.
Legal protection
The law especially protects your child. The Disability Discrimination Act makes it unlawful for any service provider (including schools, businesses and organisations) to treat disabled people less favourably than other people because of their disability. It also requires them to make reasonable adjustments to make their services accessible to disabled people.
Health
From the start, your GP and your local health authority are there for you. They'll provide the help you need to discover and assess your child's disability. They'll help you plan the treatment, therapy, equipment and ongoing medical care that your child may need.
Benefits
There are several specific benefits that you could receive to help you with the costs of caring for a disabled child. These include Disability Living Allowance, Carers Allowance, help with extra housing costs and the 'carers' blue badge scheme'. Further benefits include free dental treatment and prescriptions, help with the cost of glasses and in some circumstances travel to hospital, school meals and even road tax exemption.
Education
Depending on their kind of disability your child may benefit most by attending a special school - an environment specifically designed to match their educational needs. Alternatively your child may receive the extra support required through the special needs provision available in a mainstream school. Your education authority and health service providers will help you access your child's special educational needs and recommend the most appropriate way forward for their education.
Extra support
Your council can provide extra support for you and your child. This can include special leisure facilities and advice and support for people just like you. There are a number of support groups for disabilities and specific conditions.
In summary
Disability affects some 15% of people in the UK at some time in their lives. You can't prevent your child's condition but you can minimise the disability they experience by ensuring that they get the best support available and remembering that they have rights. Your child is protected by the Disability Discrimination Act. The government, your local council, education and health authorities are there to help. Don't think you have to go it alone. Get as much information as you can about your child's condition. You may be able to receive financial help to assist with caring for your child. Find out what services, support, benefits and advice is available and make contact.
Support groups, parents' groups and other organisations are out there to help you cope. Contact them and they will be able to give support and advice, as there are others like you.
For further advice and information visit the 'Other websites' and 'Read more' sections on this page.
Helpline telephone numbers
NCH - The Children's Charity: 0845 7626 579
Contact a Family: 0808 808 3555
Supportive Parents: 0117 9897725
The Child Health and Disability Team (for South Gloucestershire): 01454 866259